-Two honored because of kindness, support and commitment
to education about this rare disease –
-Demi, Ned and Honor Society to attend Premier Gala
on Monday, May 11, 2009 at the Mondrian Hotel in Los Angeles –
Here is some information on the disease from Sarah!
Dear APFED Readers:
Around 3 a.m. my day begins by waking with diarrhea and vomiting. After a couple of hours rushing to the bathroom sweaty and nauseated, it is time to get ready for school. I suffer multiple symptoms including difficulty swallowing, nausea and vomiting, abdominal and chest pain and many more. Eosinophilic Disease is not curable, at least not yet, and I can only manage the symptoms by getting an amino acid formula through a feeding tube that was surgically placed into my stomach.
I often dream about being able to do the things that normal kids my age do. But the thing I want most of all is to have the opportunity to go through the day not feeling sick. I really do not know what it is like to get a good night's sleep, wake up without feeling nauseous, and get through a day without throwing up and having diarrhea.
Most people don’t understand the struggles of living with an Eosinophilic Disease because the disease is not known by many people. This gala, honoring two special people that have educated themselves about the disease and dedicated themselves to spreading awareness will help all of those who live with an Eosinophilic Disease. Awareness will lead to advances in treating Eosinophilic Disease and maybe, one day my dream will become a reality.
Deko here...hey V.I.T.s this is a great organization to get involved in. Wow, I read all about this disease and just feel so bad for Sarah. What an inspiration she is to so many of us. I just have to say, when you are down in the dumps think of Sarah and what she has to live with her disease. She motivates me right now! Go Sarah, and thank you Sarah for sharing your story with the world. I had never heard of Eosinophiclic Disease how about all of you?
L8R...Deko---Go out and GET INVOLVED!!